Treatment involves more than routine medical diagnosis, hospitalised care or even the prescription of drugs. When confronted by illness, patients seek professional help and advice from their doctors, and also rely on support from family members, peers and fellow patients. Patients' with genetic diseases such as A-T are no exception to this reality. They too face complexities and complications that require a network of professional support staff, family, and friends.
The following patient groups and charities have been set up to assist the global A-T community with various services. Click on each organisations logo or the social media links for more details. If you wish to notify us of an A-T patient group that should be included in our listing or have further information to enhance an organisations listing, please contact us using the email address listed at the bottom of this page.