Global Directory A-T Global Directory

Patient Groups

Treatment involves more than routine medical diagnosis, hospitalised care or even the prescription of drugs. When confronted by illness, patients seek professional help and advice from their doctors, and also rely on support from family members, peers and fellow patients. Patients' with genetic diseases such as A-T are no exception to this reality. They too face complexities and complications that require a network of professional support staff, family, and friends.

The following patient groups and charities have been set up to assist the global A-T community with various services. Click on each organisations logo or the social media links for more details. If you wish to notify us of an A-T patient group that should be included in our listing or have further information to enhance an organisations listing, please contact us using the email address listed at the bottom of this page. 

Click on the organisation's logo to go to their web site
UK Facebook Twitter Instagram Youtube info@actionforat.org  Copy to Clipboard Copied
Spain Facebook Twitter Instagram Youtube presidencia@aefat.es  Copy to Clipboard Copied
France Facebook apratcontact@gmail.com  Copy to Clipboard Copied
Israel Facebook office23@netvision.net.il  Copy to Clipboard Copied
Italy Facebook Youtube info@associazione-at.it  Copy to Clipboard Copied
Japan Facebook info@double-rainbow.jp  Copy to Clipboard Copied
USA Facebook Twitter Instagram Youtube info@atcp.org  Copy to Clipboard Copied
France Facebook Instagram Youtube Linkedin contact@ateurope.org  Copy to Clipboard Copied
India Facebook Twitter Instagram ataxiaindia@gmail.com  Copy to Clipboard Copied
Turkey Facebook Twitter Instagram iletisim@atileyasam.org  Copy to Clipboard Copied
Germany   stefan.zielen@kgu.de  Copy to Clipboard Copied
Norway   beronsta@bbnett.no  Copy to Clipboard Copied
UK Facebook Twitter Instagram Youtube Linkedin info@atsociety.org.uk  Copy to Clipboard Copied
Australia Facebook Youtube info@brashat.org.au  Copy to Clipboard Copied
Belgium Facebook contact@hope4at.org  Copy to Clipboard Copied
Switzerland Instagram liveassoc@gmail.com  Copy to Clipboard Copied
Brazil Facebook Instagram projetoatbrasil@gmail.com  Copy to Clipboard Copied
Poland Facebook fundacja@razemzdazymy.org.pl  Copy to Clipboard Copied
Netherlands Facebook info@twanfoundation.nl  Copy to Clipboard Copied