Being such a rare disease, it is critical that any effort, resources and/or funding committed to finding a cure for A-T (Ataxia Telangiectasia) are maximised. This can only be achieved through a coordinated effort by all of the major stakeholders across the globe including patients and their families/supporters, researchers, clinicians and charitable organisations.

A number of charitable organisations have taken the initial steps to formally develop an A-T Global Alliance through a series of meetings via video link. The first significant outcome of this group was the creation of this website. It was agreed that the website would not attempt to replicate any of the information already available on existing websites around the world but to act more as a directory to other sources of information (e.g. websites, documents, relevant groups/meetings, etc.).