This website is hosted, maintained, and developed by BrAshA-T Ataxia-Telangiectasia, Brisbane, Australia.

This page explains when and why we collect personal information about people who visit and interact with our website, how we use it and how we keep it secure.

We take great care with any information we receive from you and are constantly looking at ways we can improve what we do so we may change the content on this page from time to time. Please check this page occasionally to ensure that you are happy with any changes. By using our website, you are agreeing to be bound by our policy.

Who are we?

Staff and volunteers based at various A-T Global Alliance member institutions look after the A-T Global Alliance website, its content and newsletter but the main website administrator is BrAshA-T Ataxia-Telangiectasia (ACN 128 998 425) based in Brisbane, Australia.

How do we collect information from you?

We obtain information about you, for example, when you contact us to tell us about an event or if you sign up to receive one of our monthly newsletters, we need this information to be able to interact with you.

Like millions of other websites, we use Google Analytics to find out about where visitors to our website go to and which parts of the site arent being visited so much.

What type of information is collected from you?

The personal information we collect includes your name, email address, IP address, and information regarding what pages are accessed and when.

If you sign up to our newsletter, we collect personal information including your name and email address.

If you sign up to become a member of the A-T Global Alliance, we collect personal information including your name, email address, affiliation and affiliation address.

How is your information used?

We use (process) your information to send you our e-newsletter (if you have signed up for it) to and facilitate and maintain membership. This includes occasional email to ensure our website is working correctly, is fit for purpose and is being seen by the outside world. If you get in touch with us with a question or event you might want listing, etc. then we need to save details such as name and email address to enable us to get back in contact with you.

Our e-newsletter is sent only to those people who have specifically signed up to receive it and each newsletter gives the reader the option to easily unsubscribe from receiving any more newsletters. To ensure that the newsletter is of high quality, topical and functional we can see which articles are most popular and have been clicked on the most. For this, we need to take note of your IP address. When a newsletter recipient unsubscribes from a newsletter, we (as a matter of course) will delete their information from our newsletter system. This also deletes all other information about their interactions and the newsletters including IP address.

For those visitors (and organisations) who sign up to become members of the network we must keep a minimal amount of contact information about you to allow us to maintain your membership. As part of the A-T Global Alliance membership contract, members will be contacted only very occasionally using the email supplied to ensure their details are up to date and also about any extraordinary network business that we think needs special attention.

We will only contact members about directly related network matters and their membership.

We are happy to remove any member from our mailing lists who does not want to be contacted in this way please contact us.

When visitors sign up to become a member, they are given the choice of whether they want their details (name and country) publishing on our website. We are happy to alter this choice at any time please contact us.

The Google Analytics tracking information allows us to better understand the numbers and location of people visiting our site and what content they are reading. This allows us to make better decisions about design and writing. Occasionally, we need to compile aggregate statistics about the number of visitors this site receives, pages visited and where they are from (geographically). We also learn about the technology used to access our site, this is to ensure that the site will function correctly for our visitors.

All of our activity falls within the bounds of the Google Analytics Terms of Service.

We intend to remove each question, event requests etc. from our website once it has been dealt with and this will include accompanying contact details. Our site is backed up on a rolling basis so we would anticipate that contact details once deleted from a site would fully be removed from our systems in about a week.

Who has access to your information?

The A-T Global Alliance administrative team members are the only users (processors) that have access to your stored information whilst the A-T Global Alliance web developer oversees the protection of the information stored on the database using procedures that are described below where we cover security precautions.

We will not sell or rent your information to third parties. We will not share your information with third parties for marketing purposes.

Your choices

We fully respect your choices and are happy to remove your personal information from our systems at any time should you wish us to do so. If you would like us to remove you from our database please contact us.

If you know longer want to receive our communications please use the unsubscribe function in the footer of our e-newsletter.

How you can access and update your information

The accuracy of your information is important to us and you can always inform us of any changes to by contacting us so that we can update your information.

Security precautions in place to protect the loss, misuse or alteration of your information and protection of the overall website

When we receive information, we take steps to ensure that it is treated securely. We have an SSL certificate in place for this website. You can tell this by the presence of a small green padlock before the URL in the browser bar at the top of the screen. This means all information sent between your web browser and our web server is secure.

To ensure the functionality of our website is secure along with the information we hold on the server, we have installed specific security software. This software not only provides a firewall to all administrative areas but monitors activities of less scrupulous visitors whose aim is to gain access to areas of the site where they can install malicious code. Such visitors have their IP address blocked by our systems and this are also added to a blacklist of similar IP addresses.

We routinely monitor the security of our site's systems. When available, we update all software to maximise security. As part of our security procedures we are in touch with the wider community of web security experts who raise awareness of any potential issues and offer valuable advice.

Our server, where all information is held, is located in Australia meaning all the data and information we store is held within Australia.

Use of ‘cookies’

Like many other websites, this website uses cookies. ‘Cookies’ are small pieces of information sent to your computer and stored on your hard drive to allow that website to recognise you when you next visit. They collect statistical data about your browsing actions and patterns and do not identify you as an individual. For example, we use cookies to store your language preference. This allows us to display the contents of our website in different languages.

It is possible to switch off cookies by setting your browser preferences. For more information on how to switch off cookies on your computer. Turning cookies off may result in a loss of functionality when using our website.

Links to other websites

Our website contains links to other websites run by other organisations. This privacy policy applies only to our website‚ so we encourage you to read the privacy statements on the other websites you visit. We cannot be responsible for the privacy policies and practices of other sites even if you access them using links from our website.

In addition, if you linked to our website from a third-party site, we cannot be responsible for the privacy policies and practices of the owners and operators of that third-party site and recommend that you check the policy of that third-party site.

Review of this Policy

We keep this Policy under regular review. This Policy was last updated on the 20th of November 2020.